3:51pm This morning we were able to be here for Avelyn's teams rounds. This is always so interesting and informative. And they are always so good at answering all of our questions. Today's team consisted of the neonatologist, nurse practitioner, nurse, social worker for a while, and cardiologist for a while. So here are some of the things they discussed.
-for now we get to get rid of the bilirubin lamp...along with the shades!! :) So thankful and hopefully this continues. They will see how she responds. Her bilirubin decreased today, which was good and she has had more poopy diapers. Yay God for poopy diapers! I actually got to change one of them. So exciting!!! Ha!! ;)
-She is still peeing ok, but not great so they gave her another dose of Lasix. Hopefully this will help her continue to get rid of more of her swelling!! Again, can't wait to see her appearance when she loses more of that fluid!! Doctor wants her to continue to lose weight
-a couple BIG prayer requests...they talked today about her getting off the oscillator ventilator. This would be big for multiple reasons, one being that we would get to hold her when they put her on the other vent. Can. Not. Wait for that moment!!! They decided against it today bc her #'s aren't quite ready for it yet. Please pray that her blood gas #'s improve. O2 needs to stay up, CO2 needs to come down (it was too high today), and pH needs to become less acidic. One reason they discussed switching vents is bc she is trying to take breaths on her own, which generally is good until the breaths are too deep, which fights the ventilator. As they discussed today, it's all a balance.
-they are doing an echocardiogram as we speak. Praying the results of this are good. If the valve in her heart is closed, we pray her heart function is handling this okay. Big prayer that her heart function continues to do well!!!
-Avelyn is a little more agitated today at times. They have had to give her more doses of morphine, which we hate her having to have, but we also want her to be comfortable
-also please keep praying the fluid in her lungs goes away. It's looking better. The main area they are focused on now is her right upper lobe. Needing the fluid here to go away...and for the rest of her lungs to continue to look better.
Thankful for getting to be at the hospital today. Our little girl is a fighter and I love being with her. On our way home now to be with her big sisters. Thank u Mom for taking care of them! :) Praying God continues to be with all of us. Thank u all so much for your prayers!!
-for now we get to get rid of the bilirubin lamp...along with the shades!! :) So thankful and hopefully this continues. They will see how she responds. Her bilirubin decreased today, which was good and she has had more poopy diapers. Yay God for poopy diapers! I actually got to change one of them. So exciting!!! Ha!! ;)
-She is still peeing ok, but not great so they gave her another dose of Lasix. Hopefully this will help her continue to get rid of more of her swelling!! Again, can't wait to see her appearance when she loses more of that fluid!! Doctor wants her to continue to lose weight
-a couple BIG prayer requests...they talked today about her getting off the oscillator ventilator. This would be big for multiple reasons, one being that we would get to hold her when they put her on the other vent. Can. Not. Wait for that moment!!! They decided against it today bc her #'s aren't quite ready for it yet. Please pray that her blood gas #'s improve. O2 needs to stay up, CO2 needs to come down (it was too high today), and pH needs to become less acidic. One reason they discussed switching vents is bc she is trying to take breaths on her own, which generally is good until the breaths are too deep, which fights the ventilator. As they discussed today, it's all a balance.
-they are doing an echocardiogram as we speak. Praying the results of this are good. If the valve in her heart is closed, we pray her heart function is handling this okay. Big prayer that her heart function continues to do well!!!
-Avelyn is a little more agitated today at times. They have had to give her more doses of morphine, which we hate her having to have, but we also want her to be comfortable
-also please keep praying the fluid in her lungs goes away. It's looking better. The main area they are focused on now is her right upper lobe. Needing the fluid here to go away...and for the rest of her lungs to continue to look better.
Thankful for getting to be at the hospital today. Our little girl is a fighter and I love being with her. On our way home now to be with her big sisters. Thank u Mom for taking care of them! :) Praying God continues to be with all of us. Thank u all so much for your prayers!!
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