3:02pm Sorry...had this written shortly after noon, but lost wi-fi, so here it is finally...
When my Mom and I first got here this morning they were just starting rounds at Avelyn's bedside, so it was good timing. It sounds like our main focus at this time is to continue to get the fluid out of her lungs. It sounds like all the vent settings are improving except the one that helps keep her lungs open. This setting is still up in order to keep her lungs from collapsing-- bc of all the fluid in and outside of her lungs. Please pray this fluid in her lungs goes away!! Also, the neonatologist mentioned this morning that the process of getting rid of all her extra fluid (outside of the lungs) just takes time. He's hoping in the next week she'll lose a pound total then will remain steady for about a week after this. The renal ultrasound did look pretty good, so they did start breastmilk through a feeding tube last night, so that was good. I pray she tolerates this well and it helps her to be getting 'real' nutrition, not just a mixture of electrolytes and lipids. They started the amount very slowly...like they only gave her 2 teaspoons total last night and will gradually increase this. They will leave the bili lamp on right now, but may get rid of it tomorrow. Her blood gases had been good, but this last one they just did at noon wasn't as good; more acidotic and CO2 has gone up.--They will likely adjust the vent settings that had just improved bc of this change; just seems like so much give and take in this.
I am thankful for time with my baby girl this morning. Just me and her hanging out with no other appts so far today like we were full of yesterday. I love this little girl and just love my time with her!!! :)
When my Mom and I first got here this morning they were just starting rounds at Avelyn's bedside, so it was good timing. It sounds like our main focus at this time is to continue to get the fluid out of her lungs. It sounds like all the vent settings are improving except the one that helps keep her lungs open. This setting is still up in order to keep her lungs from collapsing-- bc of all the fluid in and outside of her lungs. Please pray this fluid in her lungs goes away!! Also, the neonatologist mentioned this morning that the process of getting rid of all her extra fluid (outside of the lungs) just takes time. He's hoping in the next week she'll lose a pound total then will remain steady for about a week after this. The renal ultrasound did look pretty good, so they did start breastmilk through a feeding tube last night, so that was good. I pray she tolerates this well and it helps her to be getting 'real' nutrition, not just a mixture of electrolytes and lipids. They started the amount very slowly...like they only gave her 2 teaspoons total last night and will gradually increase this. They will leave the bili lamp on right now, but may get rid of it tomorrow. Her blood gases had been good, but this last one they just did at noon wasn't as good; more acidotic and CO2 has gone up.--They will likely adjust the vent settings that had just improved bc of this change; just seems like so much give and take in this.
I am thankful for time with my baby girl this morning. Just me and her hanging out with no other appts so far today like we were full of yesterday. I love this little girl and just love my time with her!!! :)
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