Today: When I went to see Avelyn this morning, it wasn't as good news. Her chest looked more swollen to me again today and they also said her chest x-ray looked a little worse as well with a bit more fluid in her lungs. This is something we battled early on, and the chest x-rays had been improving. In fact her first night here, they were ready to do a chest tube to drain the fluid, but praise God the chest X-ray just before this showed some improvements, so they held on it and haven't needed it since, which we are very thankful for. It still looks quite a bit better than it did initially, so that is great. They let us take off her shades when I saw her earlier and it was so nice to see her try to open both of her bright blue eyes. Love those moments. She was getting a little agitated with them trying to reposition her, so they had to give her morphine, which they have been doing about one time per shift. When she gets agitated, her O2 goes down and her blood pressure goes up, which they don't like, so this is where the morphine helps. I'm sure she is SO uncomfortable having all that fluid, and I am complaining about a little swelling in my legs. I feel so bad for her. :( I'm sure the morphine helps with this extreme discomfort, as well.
One thing I am very thankful for is that all the staff here has been just wonderful. I missed rounds bc I was in the room pumping. Josh was there, which was good, but when I went back over there, they didn't hesitate to answer a couple extra questions I had between the rounds they were making with other kiddos. Praise God we are in good hands with great people.
Please keep praying for her to get rid of all the fluid in her abdomen, chest, head, and face, her chest x-rays to also show the fluid is leaving her lungs, and for her bilirubin levels to normalize so we can get rid of the light and she can go without those dreaded shades (this is probably one of the least of our worries, but would be an added bonus to me and I'm sure her, too). Just pray for healing...
Love u all and thank you so much for the prayers.