11:55pm Our poor baby girl. She is getting hit with so many different things. Today she had a culture come back from her trach tube showing a slight sign of infection. It was very very minimal, but is a type of infection that could potentially cause bacterial meningitis. The neonatologist doesn't think she has this, but they can't do a lumbar puncture on her to check her spinal fluid to make sure (bc of her status, increased edema, and the vent she is on that slightly shakes her body--this would put her at risk due to decreased accuracy with the test), they r going ahead and putting her on antibiotics to decrease the potential of this coming on. This afternoon she seemed restful, not getting agitated or needing pain meds, but her O2 sats were dropping some as they slightly increased her O2% again. The doctor describes her as stable and continually reitterates it's a day by day process. Praying she remains stable and continues to make progress. Josh just got home a little while ago from being up there late and said she did unfortunately gain weight again. :( It's just such a balance and will be harder to lose weight now that the focus is on getting more fluids for her heart. Despite all the other things she is battling, the focus needs to continue to be the heart. Having faith that she is in God's hands and He will continue to heal her little body. Praying she has the energy to continue to fight this, my little 'Overcomer.' They say so much of the treatment is driven by what she is 'telling' us.Thank u for praying with us!!
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Avelyn's Mommy - Lover of Jesus - Receiver of God's GRACE