2:19pm We missed this morning's rounds bc we were with Aili. She had a minor planned surgery to repair her umbilical hernia. This went great. It worked out nicely that her procedure was also at Children's Mercy downtown. I guess our slogan is "Children's Mercy, your one stop shop for your children's healthcare." :) Thankfully my wonderful mom was at home bc Brooklan was diagnosed with strep and needed a couple more hours on antibiotic before going back to school. Thx Mom!! Thankfully Brooklan is feeling better and the docs here aren't worried about it spreading.
Today Avelyn's chest xray looked a little better in the left lung, but a little worse in the right lung; they feel this is because she was on her right side just before the xray was taken, so gravity had pulled the fluid into the right side more. Her bilirubin is down, so no more light...and she is opening her eyes at times, so that has been fun!! :) She lost almost 2 ounces, which continues to be one of our biggest prayer requests.--She needs to lose weight and get rid of that fluid in her lungs, so that was definitely a positive!! Please keep praying for pee!! :) Her vent settings seem to be stable with her blood gases still looking good; all the numbers on the vent have remained low, except the mean airway pressure (MAP) which basically expands the lungs more than what they normally would. In order for us to be able to switch vents (and for us to hold her!!) this number needs to go down...so please pray for this, as well.
Thanks all and have a great Friday night!
Today Avelyn's chest xray looked a little better in the left lung, but a little worse in the right lung; they feel this is because she was on her right side just before the xray was taken, so gravity had pulled the fluid into the right side more. Her bilirubin is down, so no more light...and she is opening her eyes at times, so that has been fun!! :) She lost almost 2 ounces, which continues to be one of our biggest prayer requests.--She needs to lose weight and get rid of that fluid in her lungs, so that was definitely a positive!! Please keep praying for pee!! :) Her vent settings seem to be stable with her blood gases still looking good; all the numbers on the vent have remained low, except the mean airway pressure (MAP) which basically expands the lungs more than what they normally would. In order for us to be able to switch vents (and for us to hold her!!) this number needs to go down...so please pray for this, as well.
Thanks all and have a great Friday night!
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